June is a busy month at The Neuro-Patient Resource Centre!

This month, we are highlighting not one, not two but three important health conditions: Amyotrophic lateral sclerosis (ALS), stroke, and myasthenia gravis (MG).   

"Each of these conditions comes with its own set of challenges, and we’re here to provide valuable resources to help patients and their families navigate their journeys." 

ALS: Understanding and managing the disease 

Receiving an ALS diagnosis brings up a lot of questions and emotions.  

Newly diagnosed people and their loved ones frequently visit the Neuro-Patient Resource Centre to better understand and manage the disease. We recommend the Guide for people living with ALS published by ALS Canada and ALS Québec: https://sla-quebec.ca/wp-content/uploads/2023/06/WEB_ALS-Handbook-QC-EN_April2021.pdf  

This comprehensive guide covers all aspects of the disease as well as advice and tools for people living with ALS and their loved ones. 

Stroke: Facilitating communication and recovery 

“How can I facilitate communication with my loved one?” is one of the questions frequently asked in the Centre by a family member or friend of a person who has had a stroke and is having difficulty communicating.  

Your Stroke Journey is an essential guide to recovery for people who had a stroke: https://www.heartandstroke.ca/-/media/pdf-files/canada/your-stroke-journey/en-your-stroke-journey-v20.pdf?rev=01a46257b0634561b49b56066a4fb4be  

This guide contains a section on communication that offers tips for loved ones and communication strategies.  

Myasthenia Gravis: Mapping the patient journey 

The Neuro-Patient Resource Centre presents a new resource for people living with myasthenia gravis (MG).  

A journey mapping of patients living with MG: https://muscle.ca/services-support/advocacy/journey-mapping/  

What exactly is journey mapping for patients with MG? 

“A journey map examines a person’s needs, processes they follow and perceptions they have throughout their healthcare journey. In 2023, Muscular Dystrophy Canada (MDC) created our first journey map which was specifically for Canadians affected by myasthenia gravis (MG), a rare autoimmune neuromuscular condition.” (Source: Journey Mapping, 2024) 

Don't hesitate to drop by and visit the Centre at The Neuro, located in room 354. Email them at infoneuro [at] muhc.mcgill.ca or call them at 514-398-5358