My name is Manon Day and I am 34 years old. My first neurological symptoms appeared at age 17. I had neurogenic syncope very often, following vasovagal attack, burning sensation, trouble moving, stiffness, bladder issues and fatigue. Although I have stuttered since childhood, my disorder subsequently got worse to the point where I was slurring my words.
I consulted several neurologists but none were able to diagnose my disease. For the next decade I was left with uncertainty and no answers or treatment.
In 2011, I had the chance to be referred to the Movement Disorder Clinic of The Neuro where I saw Dr. Ron Postuma. He reviewed my family history, ran a very detailed physical examination, ordered some laboratory and imaging tests and he prescribed levodopa.
A few weeks later when I went to my next appointment, I felt a lot better! What a difference it made in my life. The medication helped me tremendously. Dr. Postuma diagnosed me with Young Onset Parkinson’s, a rare form of the disease. Usually, Parkinson’s affects people age 60 and up. I finally knew definitely what was afflicting me for so many years.
Dr. Postuma was the only neurologist who was able to unravel my medical mystery.
Although I was only 27 years old at the time. A few years later, following genetic tests, it was confirmed that I had the PARK2 gene, which has been linked to Parkinson’s disease. I must say that I will be forever grateful to Dr. Postuma because he saved my life.
I would also like to mention that at The Neuro, I receive a full range of services such as physical, occupational, speech therapy and patient education to help me with the management of Parkinson’s disease. I also have access to a nurse clinician whom I can reach anytime.
I strongly recommend The Neuro because the Movement Disorder Clinic team offers excellent medical care and it really makes all the difference in someone’s life to be treated with humanity.
On a different note, I would like to mention that in April 2017, I created a Facebook group: “Everything about Parkinson’s disease”. I now have over 4,000 followers. It’s a very active and informative blog. I can communicate with fellow Parkinson’s patients young and old and help them to cope with their diagnosis.
