Stephen Liben

Stephen Liben’s research interests are focused on questions and activities that improve understanding of the experiences of patients and families requiring pediatric palliative care. Such questions and activities include examining bereavement issues, investigating post-traumatic growth in parents caring for a chronically ill child, and participating in multicenter cohort studies in pediatric palliative care.

Selected Publications

Cadell S, Hemsworth D, Smit Quosai T, Steele R, Davies E, Liben S, Straatman L, Siden H.  Postraumatic growth in parents caring for a child with a life-limiting illness:  A structural equation model. Am J Orthopsychiatry. 2014 Mar;84(2):123-33.

http://www.ncbi.nlm.nih.gov/pubmed/24826928

Liben S, Chin K, Boudreau J, Boillat M, and Steinert Y. Assessing a Faculty Development Workshop in Narrative Medicine. Medical Teacher, August 2012

http://www.ncbi.nlm.nih.gov/pubmed/22934589

Boudreau DJ, Liben S, and Fuks A. A Faculty Development Workshop in Narrative-based Reflective Writing. Perspectives on Medical Education, Published online, August 8, 2012

http://www.ncbi.nlm.nih.gov/pubmed/23316470

Macdonald ME, Liben S, Carnevale FA, and Cohen SR. "An Office or a Bedroom? Challenges for Family-Centered Care in the Pediatric Intensive Care Unit". Journal of Child Health Care, 16(3), 237-249, 2012

http://www.ncbi.nlm.nih.gov/pubmed/22308544

Steinert Y, Liben S, and McLeod PJ. (2008). Developing Successful Workshops: A Workshop for Educators. Medical Teacher 30; 328-330

http://www.ncbi.nlm.nih.gov/pubmed/18484463

MacDonald ME, Liben S, Carnevale FA, and Cohen SR. (2008) Signs of Life and Signs of Death and Other Mixed Messages at the End of Life. J. Child Health Care 12; 92

http://www.ncbi.nlm.nih.gov/pubmed/18469294

Liben S, Papadatou D, and Wolfe J. Paediatric palliative care; challenges and emerging ideas. (2008) The Lancet Vol 371:852-64.

http://www.ncbi.nlm.nih.gov/pubmed/17707080

Mongeau S, Champagne M, and Liben S. (2007) Participatory Research in Pediatric Palliative Care: Benefits and Challenges. J of Pall. Care 23:15-13.

http://www.ncbi.nlm.nih.gov/pubmed/17444457

Liben S. Pediatric Palliative Care (2007). In LL Emanuel & SL Librach (eds). Palliative Care: Core Skills & Clinical Competencies Saunders Elsevier Press

Liben S. (2007) Chapter 40 Pediatric Palliative Care: The Care of Children with Life-Limiting Illness. In: Kliegman Behrman, Jenson, Stanton Arvin (Eds.) Nelsons Textbook of Pediatrics, 18th Edition. Saunders Elsevier Press

Liben S. Breathlessness in Children (2006) In S. Booth & D. Dudgeon (eds.).Dyspnoea in advanced disease; a guide to clinical management Oxford University Press.

MacDonald ME, Liben S, and Cohen SR. (2006). Truth and Consequences: Parental Perspectives on Autopsy after the Death of a Child. Pediatric Intensive Care Nursing 7(1): pp??

Goldman A, Hain R, and Liben S. (Eds). (2006). The Oxford Textbook of Palliative Care for Children –Oxford University Press

MacDonald ME, Liben S, Carnevale FA, Rennick JE, Wolf S, Meloche D, and Cohen SR. (2005). Parental Perspectives on Hospital Staff Acts of Kindness and Commemoration after a Child’s Death. Pediatrics 116; 884-890

http://www.ncbi.nlm.nih.gov/pubmed/16199697

Levetown M, Liben S, and Audet M. (2005). Palliative Care in the Pediatric Intensive Care Unit In Carter B & Levetown M (eds). Palliative Care for Infants, Children, and Adolescents. Johns Hopkins Press